Paper Doll
Paper Doll Explains Digital Social Legacy Account Management
ANTICIPATE THE FUTURE
An essential part of organizing your paper and information involves thinking wisely about the future. It requires anticipating what might (or will) happen and taking precautions to make things less problematic when the possible, probable, or guaranteed happens. This is why so many Paper Doll posts deal with organizing your information to pay your taxes or cope with illnesses or prepare for the worst-case scenario.
Because we don’t know when we might get ill, or be unable to handle our financial affairs, or shuffle off this mortal coil, there are documents and actions for ensuring that others will be able to take care of what’s necessary. Some essential posts from the Paper Doll vault for accomplishing these tasks include:
How to Create, Organize, and Safeguard 5 Essential Legal and Estate Documents
The Professor and Mary Ann: 8 Other Essential Documents You Need To Create
Paper Doll’s 10-Minute Tasks to Make Difficult Moments Easier
Paper Doll’s Ultimate Guide to Getting a Document Notarized
A New VIP: A Form You Didn’t Know You Needed
Cross-Training for Families: Organize for All Eventualities
In most cases, attention is focused on tangible, paper documents. However, there are some key digital precautions that everyone should take.
HOW TO SECURE YOUR DIGITAL SOCIAL LEGACY
Until the last few decades, digital assets weren’t a matter for much concern beyond ensuring that your loved ones could access your computer. Thirty years ago, most people did not even have email. It was 1995 before Wells Fargo was one of the first financial institutions to offer online banking, and most people have only needed online credentials for their most important financial accounts in the last 15-20 years.
But then there’s social media. It’s hard for younger people to believe, but Friendster, one of the first social media platforms, didn’t start until 2002. MySpace followed in 2003, and Facebook launched in 2004, but only to college students. Personally, I started on Twitter and Facebook in 2008, and platforms like Instagram and TikTok are still in their relative infancy. (Of course, each social media platform is generally taken up by younger people before its popularity spreads.)
So, it’s understandable that, unlike making sure your loved ones or executor of your will can access your checking and investment accounts to deal with your financial legacy, most individuals have spent little time thinking about handling digital social legacies.
Perhaps you’re thinking you’ll just abandon your accounts, leaving a digital ghost town. You’ll be gone, so who cares? Right? Wrong.
First, social media accounts are always ripe for hacking; you don’t want your account and image taken over by ne’er-do-wells who might prey on unsuspecting friends or followers by faking your identity. Second, social media accounts contain a wide variety of personal information, personal and family history, and photos, things that you want your loved ones to be able to control.
If you operate a business, your social media accounts for your company are almost certainly tied to your personal accounts. (For example, you can’t have a business page on Facebook without first having a personal profile.) This means that the continuity of your company’s marketing is dependent upon control over your own social media.
And finally, there’s a personal legacy to consider. You might want to keep your accounts up, as is, after you depart for all eternity (or at least until a megalomaniacal billionaire destroys your favorite platform). But you might prefer to have it taken down so that links to it cannot be used to harm your good name or be engaged in unseemly online activity. It’s tricky.
However, none of your wishes can be followed if your loved ones lack control over your social media platforms. To that end, let’s look at how you can ensure your digital social legacy is secure.
Put Your Legacy in Good Hands
Before you consider the what, you need to select the who, in terms of whom do you want to put in charge of your digital social legacy? This may or may not be the same person to whom you’d give your Power of Attorney or have as the executor of your will or designate to be guardian of your children.
Whether you call them your digital executor, digital heir, representative, or designee, you need to ask yourself:
- Whom do you trust to carry out your wishes, or anticipate your preferences if you leave no instructions? What you think you’d want in 2023 may not include things that will be unimaginable until 2043.
- With whom will you still be in close contact by the time a digital social legacy has to be managed? It’s hard to believe, but your bestie from college may be someone you haven’t spoken to in a decade by the time you are in your 40’s. One of your closest friends in your 60’s may, sadly, not be in the world (let alone your world) when you’re all in your 80’s.
- To whom are you comfortable giving access to private conversations? You haven’t necessary said or done anything in your Twitter DMs or Facebook chats that would bring shame on your family, but maybe you went through a period where you said unkind things about your ex-spouse or had some spicy conversations? You might not want your current significant other or adult children to read everything in your private social media inbox.
- Which of your friends is likely to stay current enough with technology to be able to handle your digital legacy? Your BFF may meet all the above criteria but not know a QR code from Krispy Kreme, or two-factor authentication from two-for-one taco night. Digital skills matter.
Inventory Your Digital Social Assets
Make an inventory of your social media assets. I’ve previously written about having a general digital asset inventory. Obviously, you’ll make sure the executor of your will has access to all of your financial assets (accounts for banks, brokerage houses, etc.), and next week’s post will look at a wider array of digital assets related to your personal and professional life.
For this, you’ll need organized list or spreadsheet of all of your social media platforms indicating:
- The name of the platform (Facebook, TikTok, Instagram, etc.)
- The locations where you access it (phone, computer, tablet, etc.)
- Your screen name
- Your login credentials* or the location where you keep them
* Your login credentials should change frequently, which means you may need to update this information often. Rather than keeping your logins on paper or an unlocked spreadsheet, see if your digital password manager offers emergency account access. This allows you to set access for an individual’s email address if something happens to you.
They can put in their credentials (as set by you), and you’ll be notified by email that they made an access attempt. If you’re still around, you’ll say, “Eeek! Why is the lothario I met on a cruise and married three days later trying to access my digital password manager?! I’m shutting this down and calling my attorney!” But if you take no action — because action is no longer something of which you’re capable — then they’ll gain access and be able to oversee handling/dismantling your accounts.
Once you figure out who is going to handle your digital social legacy, and have arranged for them to know where your accounts exist, there are different protocols for each platform.
Facebook Digital Legacy
One of the good things Mark Zuckerberg and company did was establish the idea of creating a Facebook legacy contact. Your legacy contact can be assigned to manage your main profile after you pass away, assuming the page has been memorialized. (You should set your memorialization preferences in your account. Anyone can request that a page be memorialized. If a request is put in, Facebook goes through a process of verifying that the person has passed away.)
A few notes: first, legacy contacts only apply to your main Facebook profile. Second, profiles don’t have to be memorialized. You can choose to have your profile deleted after you’re gone. Finally, if your legacy contact somehow doesn’t know you’ve passed but someone else requests that Facebook memorializes your account, your legacy contact will be notified by email and be able to set the rest of the process in motion.
Legacy contacts can’t actually log into your account, and thus can’t read any of your messages. They also can’t remove any of your friends or make new friend requests. A Facebook legacy contact isn’t pretending to be you, just managing your account on your behalf.
What can your Facebook legacy contact do?
- Download a copy of what you’ve shared on Facebook, assuming you’ve turned this feature on. This is a nice way to create an archive of your digital life to pass down through your family, and guarantees access to photos and information even if Facebook eventually ceases to exist. (Note, if your digital designee is just logging in with your credentials, they can also download your archive, as just you can do at any time.)
- Write a pinned post for your profile. This might be used to inform others that you’ve passed, share a final message, provide details about a memorial service, or otherwise speak to issues related to your legacy.
- Update the cover photo and profile picture for your account. Consider discussing this, in advance, with your legacy contact or revisit this issue every few years, leaving instructions in a digital will where you might have a digital executor handle such things.
- Request the removal of your Facebook account after a memorial period.
Also, be aware that your legacy contact can view all of your posts, even if you’ve ever created a post with the privacy set to Only Me. (I suspect most people are less likely to have “Only Me” posts where secret, private stuff exists. I mean, who would bother posting that to Facebook only to hide it? I assume most people use Only Me posts to draft posts, then forget to change the privacy setting. No? Just me?)
To add a legacy contact to your main Facebook profile, you can try to follow the official instructions here. There are instructions for whether you’re using a computer browser, iPhone app, or Android app, and there’s a “More” dropdown for help with the iPad app, mobile browsers, or Facebook “Lite.” The variety is the good news. The bad news? They’re out of date.
Unfortunately, when I painstakingly followed Facebook’s instructions for the computer browser (so I could verify them for you), I found that the settings Facebook said would be visible were not. Blerg.
I selected Settings & Privacy, then clicked Settings, and then was supposed to see General Profile Settings, from which I was to locate Memorialization Settings. But I never saw General Profile Settings, and none of the options I clicked yielded anything that looked like that. Ugh!
Sooooo, I followed the iPhone settings, and they were also not exact. However, I was able to noodle my way to what I needed, so I’m going to give you my own directions for using the iOS app to set your memorialization and legacy contact settings (and hope maybe Facebook’s Android directions are correct).
- Click on your face/avatar on the bottom right of the iOS Facebook app.
- Scroll down to Settings & Privacy and then tap on Settings.
- You’ll see the logo for Meta (Facebook’s parent company) and then Accounts Center. The first option is “Personal details.” Tap that. Weirdly, this will open the actual Accounts Center on a fresh screen.
- Scroll down to Personal Details (yes, again), and on the resulting page, click on Account Ownership and Control.
- You will see “Memorialization” or “Deactivation or Deletion” as options. Select Memorialization. On the resulting page, you should be able to select Memorialization and your legacy contact. I’d set mine years ago, so my only options were to delete or change what I’d already created.
It’s frustrating that Facebook doesn’t make this easier, and more frustrating that their instruction pages fail to keep pace with their platform changes. Imagine how much more frustrating it would be if you waited decades and tried to deal with this while in poor health or declining cognitive capacity!
Twitter (X) Digital Legacy
Twitter has become X (but almost nobody is actually calling it that); the documentation still says Twitter. And, unfortunately, Twitter/X does not have a formal legacy contact. Instead, your digital executor or representative will have to contact Twitter directly to delete your account. (Twitter does not have memorialized accounts.)
Twitter/X is very clear that, “We are unable to provide account access to anyone regardless of their relationship to the deceased.” So, if you don’t provide login credentials for your account to your loved ones, they will not be able to archive your posts. If there’s any chance that your family will want to archive the content of your account, they should follow these steps:
- On your Twitter/X account page, navigate to settings. (In the browser, click on “More” at the bottom of the left-side column, and Settings & Support will be your last option. In iOS, click on your face/avatar, scroll down, and Settings & Support will be the last option.)
- Click on Settings and Privacy.
- Click on Your Account.
- Click on Download an Archive of Your Data. You may have to re-confirm your password or send a code shared to you by email or text.
Note: if your designee has access to your account credentials to do all of the above, they can also follow steps 1-3 above and then select Deactivate Your Account.
To close your Twitter/X account (without access to login credentials), someone will need to submit a request for the removal of a deceased user’s account.
They’ll need to go to the Twitter deactivation page and select “I need help deactivating and account owned by a person who is incapacitated, or deceased” and then select “The owner of the account is deceased.” They’ll then fill in the remainder of the form with their name and contact information, relationship to you (the account owner), and the Twitter account name.
Allegedly (because we’ve all heard stories about how things are going at Twitter/X these days), your designee will be emailed instructions for providing more details, including information about themselves (including proof of identification) and a copy of the death certificate, in order to process deletion of the account.
Instagram Digital Legacy
Instagram is a Facebook-owned platform, so you have the same options as with Facebook, to have your account memorialized or deleted after you pass away.
Mystifyingly, however, Instagram does not allow you to make your selections while you are still living! Rather, to have your Instagram account memorialized or removed, if your designees does not have access to your login credentials, they’ll have to follow a similar process to Twitter’s and furnish proof that they are your verified representative and that you have passed on.
This page explains how to request memorializing an Instagram account. They will start by filling out this Instagram form for memorialization or this form for deletion and provide information about themselves and the deceased, including uploading a copy of a death certificate.
As with other platforms, if your designee has access to your login credentials, they can log in as you to download and archive your entire account for posterity. Of course, as with most social accounts, you can do this periodically on your own. I don’t really use Instagram, so my entire account activity is visible on one screen.
TikTok Digital Legacy
If you only use TikTok as a source of viewable entertainment, you may not care what happens with your account. Still, I’d advise you to have your digital executor log in with your credentials and close your account via these steps:
- Tap your Profile icon at the bottom right of the screen.
- Now tap the three horizontal lines (sometimes colloquially called the hamburger) at the top right of the screen.
- Select Settings and Privacy.
- Select Account. (The official instructions say to tap “Manage Your Account” but that appears to be an outdated choice.)
- Select Deactivate or Delete Your Account and confirm your selection.
On that same account screen, the next option down lets you choose Download Your Data; they’ll get an archive of your profile, activity, and app settings. However, the format options are TXT (human-readable) or JSON (machine-readable) files, so your loved ones will be able to see random comments you made, but not the cute videos you watched.
If you are a TikTok creator, note that there are no memorialization options. Your digital legacy contact can (as described above) act as you, with your credentials. It’s not uncommon to see someone’s parent or spouse appear on TikTok, explaining that the account holder has passed away. However, without access to those credentials, there’s no way to alert someone’s TikTok followers and fans that they are gone.
This is problematic because many TikTok creators use their accounts to earn money. Left unattended, an account (and the resultant earnings) could be hacked, and imposters could use the account to scam followers. To prevent this, and to ensure any monetization of existing videos is protected, this is one account where making sure your loved ones have your credentials and can access your account may protect not only your creative legacy, but your financial one as well.
LinkedIn Legacy Contact
Perhaps because LinkedIn is designed for professionals, you’d expect that more thought would be put into protecting account-holders’ legacies. I was disappointed, however, to find out that LinkedIn does not allow you to set a legacy contact in advance, nor can you arrange for page memorialization for yourself.
(This is LinkedIn’s official example of a memorialized account. Research indicates, and I hope, that this is not an actual person’s memorialized account.)
Your designee can contact LinkedIn, however, to arrange to memorialize your profile or close it. For either option, they must fill in a form verifying their standing to act on your behalf and providing proof of your passing.
It’s important to note that unlike (for example) Facebook’s memorialization practice, a legacy contact or representative can’t add a tribute or post explaining what has transpired. Instead, LinkedIn locks the account.
Still, there are significant benefits to LinkedIn’s memorialization process. They place a memorialization badge on the profile page as a symbol of remembrance. They also cancel all LinkedIn products (except Apple-related subscriptions), terminate connections to third-party services and close mobile and desktop sessions (so nobody can sneak into the deceased’s office or home computer to access account information).
LinkedIn also stops sending notifications to the decedent (so the loved one handling their email won’t have to deal with junk mail) and ceases sending notifications about them (re: birthdays, work anniversaries, etc.) to members of their network. The person who died will stop popping up in automated sections of the site, like “People you may know” and “recommended connections.” If you’ve ever been startled to see the name and likeness of someone who has passed away show up on your Facebook or Twitter account unexpectedly, you know how much a relief LinkedIn’s approach could be.
JUST THE BEGINNING
Social media accounts are just the beginning of your non-financial digital legacy. Next time, we’re going to look at how you can set up your Legacy Contact for your Apple ID account and an Inactive Account Manager (and Trusted Contact) for your Google accounts.
I’ll also share a bevy of resources for helping you manage accounts for those who have passed and make things easier for directing your own digital legacy.
Paper Doll is Clearly Organized — Translucent Tools for Getting it Together
THE LOOKS OF THINGS
Quite often, when people talk about tools for getting organized and productive, they talk about the way products look. However, if you’ve been a longtime reader of Paper Doll, you know that I’m a firm believer in focusing on function rather than aesthetics. No matter how pretty or spiffy or intriguing a product looks, if it doesn’t work well, and help you work well, then it’s a bit pointless.
That doesn’t mean I don’t recognize the psychological value of how things appear. For example, I’ve talked about how color can play a motivational role:
Cool and Colorful Desktop Solutions to Organize Your Workspace
Paper Doll Adds a Pop of Color with Bright & Sunny Office Supplies
Ask Paper Doll: Should I Organize My Space and Time with Color?
Organize Your Days With a Little Color
For me, I can’t resist things in the pink and purple range. I’ve written before about how I am a steadfast adherent to my Roaring Spring purple legal pads, and I have a purple iPhone and iMac.
Almost anything I can purchase (for the same price as the bland and boring version), I’m likely to acquire in pink or purple. As much as I try to avoid duplication, even though I have a lovely pink Swingline stapler that is perfectly serviceable,
when a generous colleague gifted me a pink Mustard-brand Bunny stapler, I couldn’t resist keeping it in my office space, too. (And yes, I do make “boing-boing-boing” sounds effects when I use the bunny stapler. Need you ask?)
How to Organize Support for Patients and Families in Need
The following anecdote from inspirational teacher, speaker, and author John Perricone has been making the rounds on the web:
Several years ago, I invited a Buddhist monk to speak to my senior elective class, and quite interestingly, as he entered the room, he didn’t say a word. (That caught everyone’s attention). He just walked to the board and wrote this:
“EVERYONE WANTS TO SAVE THE WORLD, BUT NO ONE WANTS TO HELP MOM DO THE DISHES.”
We all laughed. But then he went on to say this to my students: “Statistically, it’s highly unlikely that any of you will ever have the opportunity to run into a burning orphanage and rescue an infant. But, in the smallest gesture of kindness — a warm smile, holding the door for the person behind you, shoveling the driveway of the elderly person next door — you have committed an act of immeasurable profundity, because to each of us, our life is our universe.”
This is my hope for you for the New Year, that by your smallest acts of kindness, you will save another’s world.
Recently, I’ve had small acts of kindness on my mind. Some friends, both near and far, have been going through difficult times, and it has had me thinking about what I can do for them, especially when I’m not close enough to help do the dishes.
Dishwashing Photo by Pavel Danilyuk
Most of the time, our goal in getting organized it to make our lives easier and prevent unfortunate things from happening. However, sometimes, through nobody’s fault, bad things happen. People get sick or injured, or family member die, or people just go through dark times, and no matter how organized they were (or we were on their behalf), life gets upended.
When that happens, when a family member or friend is in bad shape and everyone has to pull together to help take care of that individual or their family, organization is the key to making everything a little less chaotic.
In today’s post, we’re going to look at some strategies and resources for helping when someone you know is sick or injured or recovering, and they or their household could use a little support.
ASSESS THE SITUATION
We can’t presume to know what someone else needs, even if we’ve been in the same situation, or even if we’ve helped that same person before.
An organizing client recently told me that she and her husband had needed little assistance after the birth of their first child, but experienced profound difficulties after their second was born prematurely. She was in the hospital for an extended ime, and the baby was in the NICU for months after that.
After the first birth, she needed only a little errand-running and someone to sit with the baby so she could shower or nap. After the second, she and her husband felt exhausted and overwhelmed, and needed support for everything from meals and childcare to housekeeping and someone to check if they’d paid the bills.
Most people will welcome some assistance, while others struggle with the idea of letting well-intentioned others make arrangements. So, talk to them or their caregiver to get a sense of what kind of support they will need, want, and accept. Common categories of assistance might include:
- Grocery shopping — Depending on the individual’s or family’s preference, you may perform a weekly inventory and create a shopping list to share with others helping to cook, or you might help the family set-up and learn how to use online grocery shopping apps and arrange for delivery by someone in the support network.
- Cooking — Whether you’re helping with meal preparation in the home, or cooking at your house and delivering, ensure that everyone’s dietary preferences and restrictions are considered. It does nobody any good to have a freezer full of pasta-based casseroles if someone has a gluten sensitivity. (As much as everyone is environmentally conscious, this is one time when using disposable containers to lessen inconvenience should be considered.)
- Cleaning — When you don’t feel well, messy or dirty surroundings will make everything worse. Imagine the relief of a clean bathroom and a tidy kitchen for someone spending most of their time at home or in medical settings.
- Childcare and transportation to/from school and extracurriculars — This might be a good fit for friends who are parents of the children’s classmates, but don’t forget to invite “aunties” and “uncles,” relatives or not. When things are stressful at home, whether there’s an illness or a new baby, getting a special day out with grownup who isn’t a parent or grandparent can make a child feel valued and like a VIP.
- Errand-running — Having someone who can dependably pick up prescriptions or make store returns ensures that the household can still run (somewhat) smoothly without daily stressors.
- Pet care — Fido and Fluffy may not be able to talk about their feelings, but you know they sense that something is going on. Some people in the support network might limit their efforts to feeding and cleaning up after pets, while others might be up for taking pets on an adventure to the dog park or the groomer.
Toddler Walking Dog by Robert Eklund on Unsplash
- Transportation to medical appointments — Imagine how uplifting it would be have a trusted friend take you to your appointments and feel, even for a little while, like the company you’re keeping with them is just a normal excursion!
- Serving as a scribe during medical appointments — Being ill is stressful, and it’s hard to focus when you’re not feeling physically and/or mentally at your best. Having a trusted, confidential friend available to take notes, and maybe even to ask questions if you see they’re looking confused, could be a huge comfort. (It’s a plus if the person has any medical background, like a retired nurse or PA, but in a pinch, you’d be surprised how much someone picks up watching two decades of Grey’s Anatomy.)
- Acting as entertaining/distracting company during chemo or other treatments, and during convalescence. Again, whatever someone can do to make a moment or an hour feel “normal” might be a blessing.
- Emotional support, both for the person and their caregiver(s) — This is an especially good category for loved ones who live at a distance. Having someone in the Pacific Time Zone who’s awake and able to offer a shoulder when everyone in your time zone is asleep gives patients (and their families) the chance get what they need without feeling burdensome. Encourage people who can’t participate in more formal support schedules or visit in person to be there however they can, even if that’s a card or a texted meme.
Read about others way to help.
How to Help Someone Who is Sick (An impressive list from the Kansas Health System)
How Not to Help a Friend in Need (New York Times)
50 Thoughtful Gift Ideas & Gestures for a Friend in Need (PrettyWellness.com)
Do not just ask, “What can I do?”
This puts the onus on someone whose mental reserves are already taxed to try to conceptualize what they need and try to feel comfortable asking for a favor. Instead, your goal is to to say, “Here are the things we’ve thought of. What are you comfortable letting us do? Is there anything we’ve forgotten that we could add to the list?”
CREATE A SUPPORT NETWORK
Even if you’re the sibling, the in-law, or the best friend, you can’t do it alone. If someone you love is going through any kind of illness, treatment, or recovery, or is otherwise in a difficult position (for example, is in grief or suffering depression), you can’t be the magic wand that solves all the problems. What you can be is a project manager so that, together, you can all maneuver that wand to make a little comforting magic.
Gather your community.
With the permission of your loved one and/or their partner or caregiver, reach out to friends, family members, neighbors, and colleagues to see who is willing and able to help. Use social media, email, texts, or phone calls to inform people what you’re trying to do and why, and ask for their support.
Make clear that you’d much rather someone take on a smaller role and be able to contribute than to take on too much and not be able to provide what’s promised when the time comes.
Don’t presume that everyone is equally skilled and comfortable with all tasks. Provide a list of the tasksto be completed, and ask individuals to state where and when they’re able to help. People who love to cook will find it easy to “make double” when preparing meals, while those with flexible schedules and a love of kids will probably be eager to play taxi from school to ballet or soccer and then home.
Coordinate a schedule.
Once you have a group of people who are ready to help, you’ll want to establish a schedule that ensures the person you’re supporting receives consistent help without overwhelming any one individual.
This may involve setting up rotating shifts for different categories of tasks or assigning specific days to different people. Some in the network will have a great deal of flexibility while others can only help on weekends or evenings. Meet people where they are.
Communicate clearly.
Once everyone is on-board with providing support, select a method to ensure clear and open communication.
Rotary Phone by Sam Loyd on Unsplash
Different people (and definitely different generations) have decidedly varying communications preferences. Boomers and retirees might not mind phone calls, while GenZ and Millennials (and folks with jobs that require a lot of intense focus) are more likely to prefer texting or emails, so they can reply at their convenience. Create a master list with everyone’s name, phone number, email number, and preferred contact method, and if everyone is amenable, share it as a spreadsheet in Google Drive or a note in Evernote.
Sometimes, you’ll want to communicate with the entire group rather than individuals, and email might work best. There are also online platforms (as we’ll discuss below) to help develop support calendars, allowing individuals to sign up for the tasks and times that work best for them.
Communicate with the person/family, too. If people are going to be showing up to drop off food, make sure they know the schedule, and get the OK for how things get delivered or accomplished. They may prefer that nobody come to the house before 10 a.m., or that meal deliveries come to the side/back door (which may be easier for a recovering person to access), or that they get a text ten minutes in advance of anyone showing up.
Remember the importance of privacy and confidentiality.
I can tell you from first-hand experience that being a patient, whether for an acute condition or a chronic one, means having to give up far too much privacy and dignity. Remind and encourage everyone involved to respect the individual’s confidentiality. Someone may feel great about having delivered three days of meals to the family and want to share that warm fuzzy on social media, but nobody’s humblebrag should come at the expense of another person’s privacy.
Of course, it should go without saying that only the individual you’re supporting (or, if applicable, the family) should be sharing medical updates (unless a proxy is asked to do so).
Consider crowdsourcing professional support.
Depending on the individual’s needs, the support community may want to provide funds to help accomplish professional work when the individual in crisis is unable to perform their usual tasks. Help might include a professional organizer for household functionality, a daily money manager to keep up with finances, or an academic tutor for the children.
Your network might want to gift the individual in-home massages or salon services (manicures, hair/scalp care, skin care, etc.) to boost their spirits and support their physical well-being.
Embrace flexibility.
As you likely know, health conditions can be unpredictable and do not abide by the calendar. Be prepared to adapt and reconfigure the support schedules as needs change.
USE SUPPORT RESOURCES THAT ALREADY EXIST
There’s no need to reinvent the wheel. Take advantage of resources that can complement the efforts you’re already making.
Meal and Support Scheduling Platforms
Caring Bridge — One of the best-known platforms of its kind, Caring Bridge exists to help provide updates during a health crisis. It’s like a cross between a personalized web site and social media in that family or assigned parties can create posts updating someone’s health status and needs, and others can provide supportive comments. However, Caring Bridge also has a planner that allows volunteers to offer help with all the categories described above.
Caring Bridge is free to use, has no advertising, and is a non-profit.
Meal Train — This calendar platform lets family, friends, neighbors, and colleagues sign up to provide meals for the person/family in need. It takes a lot of the administrative weight off of whomever is project-managing the family’s support, and Meal Train provides a straightforward way to organize and coordinate meal deliveries to ensure that the patient is getting nourishment and that the household isn’t eating takeout pizza for weeks on end.
- Create a free Meal Train page for the person/family whom you’re supporting.
- Enter the dates when meals will be needed.
- Fill in all of the preferences including favorite foods, food allergies/sensitivities, and the ideal drop-off times to avoid disturbing the patient or family.
- Share the Meal Train link with everyone in the support network so they can sign up to provide meals.
Members of the support network might benefit from reading some of Meal Train’s helpful articles, like:
11 Trips: Meal Train Etiquette for the Savvy Participant
6 Tips for Delivering your Meal
When Dropping Off a Meal, Should I Stay or Should I Go?
Although Meal Train is free, there’s a Pro level for $15/month for groups that might need to oversee multiple support pages. For example, if your house of worship or community group makes a point of supporting families in need, Meal Train Pro is an option.
Lotsa Helping Hands — is similar to Caring Bridge and Meal Train in that it supports the creation of a caregiving community. You can organize and coordinate all of the cooking, cleaning, errand-running and other tasks described earlier in this post, and individuals can sign up to provide support based on the person’s/family’s specific needs and each individual’s capacity.
The platform includes a care calendar for volunteers to sign up for tasks, an announcement page for updating everyone on progress or setbacks, a “well wishes” pages for sending messages to the patient and family, and a photo gallery for sharing supportive pictures.
Specialized Platforms
Not everyone makes an ideal volunteer for providing meals. But just because you (by which I mean I) can’t cook doesn’t mean you can’t provide a meal. Sure, you can use a service like Door Dash or GrubHub to dial up a person’s favorite restaurant meal and have it delivered, but sometimes you want a person to have a real home-cooked meal, even if you know they’re better off not having it cooked in your home.
To that end, I was delighted to discover Lasagna Love.
Lasagna Love provides delicious lasagnas for those in need. It might be for a patient, a family who has had a new baby, or even for someone you know who is just going through a really rough patch. Lasagna Love is a bit of a community, itself. You can:
- Request a lasagna for yourself or someone in need — Search by zip code to see if Lasagna Love is operational near you. You’ll get matched to a local lasagna chef to coordinate a date and time, and then you’ll get a safe and contactless delivery of lasagna!
- Volunteer to make lasagnas for people who have requested them.
- Donate to the cause!
- Sponsor a lasagna chef through Patreon.
The site describes its efforts this way (emphasis mine):
Lasagna Love is a global nonprofit and grassroots movement that aims to positively impact communities by connecting neighbors with neighbors through homemade meal delivery. We also seek to eliminate stigmas associated with asking for help when it is needed most. Our mission is simple: feed families, spread kindness, and strengthen communities.
Something tells me that the Buddhist monk in John Perricone’s classroom would approve. After all, if you’re making the lasagna for someone who needs it, it’s goes one step beyond helping Mom do the dishes. It’s may be a small act of kindness, but one with huge potential results.
If you think you’d like to become a lasagna chef, learn how to get involved at the website and take a peek at the simple graphic, below.
Make lasagna once or become an ongoing lasagna chef or find a balance somewhere in between. Hear more directly from Rhiannon Menn, the founder:
While Lasagna Love was a brand new concept to me, the next resource is the one I’ve known about the longest, and have been gratified to recommend it to clients and others who have sought referrals.
Cleaning for a Reason — This 501(c)(3) nonprofit organization provides free home cleaning to patients battling cancer.
Cleaning for a Reason connects its trusted network of 1200 residential cleaning companies, cleaning industry volunteers, and community volunteers with cancer patients and their families to provide a clean, healthy environment.
Patients or their loved ones can apply for two free home-cleaning sessions and use this page to find a service provider. Cleaning for a Reason serves all individuals and families with any type of cancer, and patients are eligible if they’re recovering from cancer surgery, in cancer treatment, or in hospice care.
Cleaning for a Reason allows applications to be submitted by family, friends, and colleagues, as well as caregivers, doctors, and nurse navigators, but asks that you first verify that the patient is willing to accept the services.
Hear more from the founder, Debbie Sardone:
You can read about the program at the Cleaning for a Reason site and on the Facebook page.
If someone you care about is ill or going through a difficult time, anything you do to let them know they are loved and valued will help. However, if you’re able to project-manage or volunteer by providing organized and consistent support, it will make a significant difference in their well-being during challenging times.
Whether you do the dishes, make a lasagna, organize the troops, or come armed with two boxes of tissues, it’s worth repeating: “By your smallest acts of kindness, you will save another’s world.”
Paper Doll Organizes Your Space, Money, and Well-Being While Traveling
The year is now officially half over. Have you used many of your paid vacation days? Have you used any of your vacation days?
One of the signs of toxic productivity is the sense that there’s always more work to do, more things to accomplish, and that vacation time will always be there. But the human mind needs rest just as much as the body, and going without both rest and recreation is a recipe for disaster.
Going without time off is called vacation deprivation, and according to Expedia’s 2023 Global Deprivation Report, Americans take 8-1/2 fewer vacation days than our global cousins, and nearly half (45%) of Americans left vacation days untaken last year. And that’s on top of the fact that we already receive fewer paid vacation days than most of the industrialized world.
Of course, even those who have vacation days and value the time off have been squeamish about traveling. (I’ll admit, I’m one of them.) COVID is still out there, and inflation means our hard-earned pennies don’t go as far.
Still, a staycation often doesn’t feel like a vacation, and getting out of Dodge for a while is a great opportunity to reset your perspective. So, let’s at least look at some options for saving time time and money and making the travel experience less stressful.
Of course, Paper Doll has covered travel-related topics before. Back in 2018, I wrote Paper Doll’s 5 Essential Lists For Planning an International Vacation.
For what it’s worth, it’s almost entirely applicable to domestic travel, too, and covers lists of:
- What to acquire for your trip
- What clothing and accessories to pack
- What other essentials to pack
- What to do before you leave
- Important phrases (admittedly, the most “international” of the lists)
For those who prefer to listen rather than read, much of the material covered was included in two interviews I did on the (much-missed) Smead podcast, embedded in Paper Doll on the Smead Podcast: Essential Lists For Organized Travel.
Today’s post is more along the lines of “travel tidbits,” a collection of nifty options for making travel situations more organized so you can focus your attention on relaxation.
GET SOME ELBOW ROOM AT THE AIRPORT
Let’s start with stuff. As you prepare to travel, you gather a lot of stuff to keep handy — to watch, to use, to eat. But it’s not always convenient to access it.
goDesk
Have you ever tried to set up an iPad so you and your traveling companion (or your tussling tiny humans) can watch a movie?
Have you ever tried to eat a meal balanced on your lap in the boarding area because there were no tables near the restaurants, but there were also no tables at your gate?
Do you know what’s is like to struggle to find something in your bag but there’s no place to put the items as you take out and sort through them?
Wouldn’t it be nice to have a desktop space when you’re traveling? But obviously, you don’t want to schlep around an actual desk when flying, and those beanbag-bottom laptop desk surfaces designed for when you’re sitting on your couch aren’t really workable in those teeny airport chairs. But I’ve recently found what seems like a nifty solution.
The goDesk lets you transform your rolling bag into a desk/entertainment center.
Taking advantage of the fact that almost all modern luggage pieces, particularly carry-ons, have those collapsible/telescoping handles, the goDesk can attach to your bags telescoping handle in seconds. It gives you enough desk space to securely hold a full-sized laptop, your airport meal, your child’s tablet, or the contents of your tumbled purse.
Later, when you’re ready to board, use the on/off release knob, and goDesk detaches in seconds. It’s got a slim profile, so you can just slide it in your outer luggage pocket.
The goDesk’s unique lock/latch system makes it compatible with most 4-wheel carry-on roller luggage, and it supports up to 12 pounds. The whole unit measures 11 1/2″ wide x 10″deep x 7/8″ high (with a 10″ x 10″ desktop surface) and ways only one pound.
There’s a flip-up media stand to use with iPads and other tablets, smart phones, or small books/notebooks, and a slide-out cup holder so you don’t have to worry about your beverage wobbling and spilling on the desktop surface (or your pricey devices).
The goDesk is made in the USA with TSA-approved materials and comes with a one-year warranty. It’s available from the goDesk website for $39.95 and ships with 2-3 day delivery.
AVOID EXCESS FEES WHILE TRAVELING
The first time I ever did any significant traveling without my family was when I was in college. I was going to be working on a special school-sponsored project in San Francisco. Although I had a debit card and a credit card, Paper Mommy took me to AAA to get American Express-backed travelers checks, where I dutifully filled out forms and signed the checks and registered them. I was told I would then countersign them when I used them to purchase anything, and if they were lost, I could easily get them replaced, just as Karl Malden promised in all those commercials.
I don’t know anyone who uses travelers checks anymore. Most of the time, you’re going to use a credit or debit card, or something like ApplePay from the wallet in your smart phone using magic technology. But sometimes, you want to have cash on hand, whether to tip a bellhop or give money to a talented busker or just pay in local currency.
The problem? When you aren’t getting cash from your own bank’s ATM, you’re likely to have to deal with an ATM surcharge fee. However, there are a few ways around that problem.
ATM Fees/Surcharges
In the US, different ATM machines (whether they are associated with banks or not) are affiliated with ATM networks. If you look on the back of your ATM card, you’ll see the network in which it participates, and there should not be a fee if you use an ATM that is also part of that network. So, if your bank uses STAR, or PULSE, or PLUS and you find an ATM in that network, there shouldn’t be a fee. However, it’s going to take some digging to get that information and locate the right ATM, and that will add frustration and take time out of your precious vacation.
ATM Keypad Photo by Eduardo Soares on Unsplash
Luckily, there are a few options to quickly identify which ATMs do not have surcharge fees.
The Allpoint Network has more than 55,000 fee-free ATMs. Download the app or use the website. Enter your zip code, and the Allpoint search will identify which ATMs in your vicinity do not charge a fee. Scroll through the map or list to find an ATM near your current location or in the neighborhood of where you’re planning to be. (Note: the app has a geolocator function, so you don’t have to type in your zip code, which is convenient when you’re traveling in a strange city and don’t necessarily know the zip code.)
Similarly, you can use the ATM locator on the MoneyPass website. Type in your zip code and then click on the “Search options” button. From the drop-down, make sure “All Surcharge-Free ATMs” is checked. (Other options include deposit-taking ATMs, handicapped-accessible ATMs, and 24-hour ATMs.) You’ll be able to see your options on a map and in a list.
If you’re traveling abroad and want cash, it can be especially frustrating, as surcharges may vary from non-existent to upwards of $8. (If you have to pay a flat fee rather than a percentage, consider taking out more money but less often so you won’t be drained by excess fees.)
For foreign ATM withdrawals, try ATM Fee Saver, available in 40 countries in North, South, and Central America, Europe, Africa and the Middle East, Asia, and Australia. ATM Fee Saver’s app is available for iOS and Android. The site also has a great blog with travel-related financial advice, like this one on the 9 best ways to save foreign ATM fees.
FIND A LITTLE EXTRA HELP IF YOU NEED IT
Traveling with a disability can up-end all kinds of travel plans. Whether you’re traveling with service animals, need alternative security measures (for example, if you have an implanted or attached medical advice), or will need a wheelchair or other accommodations at your destination, you’ll need to plan ahead.
To ensure that you’re getting all the right information you need, be sure to review the following resources:
Traveling with a Disability (Centers for Disease Control and Prevention) — This covers a wide variety of tasks, like contacting your physician in advance of your travel to ensure you have destination-specific care, acquiring MedicAlert jewelry or other notification-bearing items, to specialized considerations for air and cruise travel.
Traveling with a Disability (U.S. Department of Transportation) — This includes the Airline Passengers with Disabilities Bill of Rights and other helpful information.
Travel: Tips for People with Disabilities (DisabilityInfo.org)
10 Tips for Traveling With Physical Disabilities (Travel Channel)
Traveling abroad with disabilities: Here’s a post-pandemic guide (USA Today)
How to Travel with Invisible Disabilities (AARP)
6 Tour Companies Dedicated to Travelers with Disabilities (Condé Nast Traveler)
Speaking of disabilities, it’s been really gratifying to learn that great strides are being made in helping travelers living with invisible disabilities.
In case you’re unfamiliar with the term, invisible or hidden disabilities can refer to any type of disability that is not obvious. If you see a person in a wheelchair, using crutches, or walking with a white cane, that’s a visible disability. Invisible disabilities may relate to physical concerns that are not immediately apparent (anything from deafness to asthma, heart conditions to diabetes). But they may not be primarily physical in nature — consider Alzheimer’s, aphasia, dyslexia, autism, etc. Any of these can make traveling problematic.
Hidden Disabilities Sunflower Program
Recently, I was fascinated to learn about the Hidden Disabilities Sunflower program. This program provides lanyards with yellow sunflowers on green backgrounds to alert airport and airline workers that the person wearing one might need some extra time or assistance. Imagine how much easier it would be to have people trained to look for the lanyard rather than always having to jockey in line to request assistance for yourself or someone with whom you’re traveling!
The key is that you don’t need to disclose your specific disability to get a lanyard, nor does the lanyard say why you need help, because “why?” is beside the point. Instead, workers are trained to recognize that individiuals wearing the lanyards may need help, support, or additional time, and should ask, “How may I help?”
That said, individuals can personalize the card (for purchase at a small fee) for their lanyard with up to five different icons (of 25 available) to help identify the kind of assistance they may need. For example:
Hidden Disabilities Sunflower initially launched at the UK’s Gatwick Airport in 2016. The program has now grown to include about 216 airports worldwide in 30 nations, including 93 here in the United States (of which 19 will be launching the program soon). British Airways, Air France, and ten other airlines, along with many other businesses, have also signed on to participate in the program.
In addition to prioritizing assistance, airports and shopping venues are developing Sunflower programs. At the Pittsburgh airport, to help individuals with sensory issues, they’ve developed a room with tunnels, wall displays, rocking chairs and special lighting to create a soothing environment. The Seattle airport has a similar Sensory Room and Interfaith Prayer area.
Learning about this reminded me of the large tunnel between concourses at the Detroit airport with psychedelic lighting, which I originally saw in 2016. On each side of the tunnel, there’s a button to push so that people with epilepsy or other sensory issues for which the tunnel would create difficulties can stop the effects. Push the button and the strobe and lighting effects cease for the period it takes to cross to the other side, then start again soon after.
So far, the Hidden Disabilities Sunflower index includes more than 900 disabilities, and there’s a form to list any that have been missed.
The Sunflower lanyards are free.
Find an airport or business participating in the Hidden Disabilities Sunflower program here.
If you do travel in the coming months, I hope you have a safe, serene, and organized journey.
Paper Doll and Friends Cross an Ocean for Fine Productivity Conversations
When you love what you do, it’s easy to make connections with people involved in the same things. This is especially true for me when I get around people who like to talk about organizing and productivity. (I mean, who wouldn’t want to talk about productivity and organizing?)
DO YOU HAVE AN ORGANIZED PERSONALITY?
At the start of May, I saw that my friend, accountability partner, and friend-of-the-blog Dr. Melissa Gratias had posted that she was a guest on Jon Tromans’ Triple “T” Productivity Podcast in an episode called Productivity. It’s all in your mind! A chat with Dr Melissa Gratias. Jon’s in the UK, Melissa’s in Savannah, and the conversation was out of this world!
(You know Melissa from many posts, but especially Paper Doll Interviews Melissa Gratias, Author of Seraphina Does Everything!)
Melissa and Jon pondered the age-old question of whether we are born productive (or unproductive), or whether it’s matter of environment and training. As Melissa is a trained in psychology (she has a Ph.D. in Industrial and Organizational Psychology!) she offered insight based on “the Big Five personality traits” in the Five-Factor Model of Personality (also called The Big Five Model), and particularly the role of conscientiousness. I found this fascinating and jumped in to read more!
For those who haven’t taken a Psych class since college, the theory (which can go by the acronym CANOE or OCEAN) says that personality can generally be examined in terms of five core factors, each along a continuum:
- Conscientiousness — You might think that being conscientious is just a good policy. However, as a character trait, one can over- (or under-) do it. Too high on the conscientiousness continuum, and you might be a perfectionist or workaholic; too low and you might give in to impulsiveness, irresponsibility, and disorganization. The goal is to be organized, responsible, and productive without going overboard into the toxic productivity realm we’ve been talking about lately here on the blog. Melissa talked with Jon about the correlation of the conscientiousness personality trait in seeming to be “naturally” organized.
- Agreeableness — Understandably, the continuum here ranges from those who are too trusting, selfless, and possibly even gullible on the high end to being overly suspicious, uncooperative (or — eek! — manipulative) on the low end. Someone striking a balance will be compassionate, respectful, and trustful to a logical degree.
- Neuroticism — Note that this refers to the tendency to experience negative feelings. Neuroticism feels like the one odd duck in the model, because one would assume you wouldn’t want to be neurotic at all! As you’d expect, at the high end of neuroticism, someone might be anxious or depressed, pessimistic, and even filled with shame. But on the low end, it’s apparently possible to have too little neuroticism, leading to a sense of shamelessness. The safe harbor here is being confident and calm,
- Openness to Experience — Those toward the high end may be seen as imaginative or creative, spontaneous, and curious, while those in the comfortable middle may be prefer practicality and routine, and at the low end might seem inflexible.
- Extraversion — The range of extraversion is wide, and someone might range from attention-seeking to reserved. Basically, you want to be out there but not too out there! (Someone should have discussed this with 7-year-old Paper Doll.)
If you’d like to read more about this model, these articles offer a good start:
Big 5 Personality Traits (Psychology Today)
Big Five Personality Traits: The 5-Factor Model Of Personality (Simply Psychology)
What Are the Big 5 Personality Traits? (Psych Central)
For what it’s worth, I did a self-test at BigFive-Test.com (having searched for a free test, I picked one at random) and got the following results. As you can see, I score highest on conscientiousness, which would seem to validate Melissa’s wise thoughts on Jon’s podcast, given my field of work.
The results also looked at various characteristics within each trait. For example, extraversion looked at friendliness, gregariousness, assertiveness, activity level, excitement-seeking, and cheerfulness. Conscientiousness broke down the score for self-efficacy, orderliness, dutifulness, achievement-striving, self-discipline, and cautiousness.
And speaking of caution, this was just a free internet test, probably more valid than Which Grey’s Anatomy Character Are You? but not as valid as working with a psychologist or expert in this kind of testing. Also, in case you’re wondering, at least according to the internet, I’m Lexie Grey.
Lexie Grey via GIPHY
(Even considering the dangers of the Red Wedding, something tells me I should have gone with a Game of Thrones character quiz!)
But I digress. We were talking about Jon Troman’s Triple “T” Productivity Podcast.
JON TROMANS’ CAST OF CHARACTERS
I was charmed by Jon’s interview with Melissa, which mixed fun and lively conversation with a deep dive into philosophies of productivity. Although I did not know Jon, I recognized his name as a fellow Evernote Certified Expert, and made a point to learn more about him.
The next week, he profiled a professional organizer, Lucy Milligan Wahl, owner of LMW Edits in San Francisco for the episode Maximizing Productivity through an Organised Life. A chat with Lucy Milligan Wahl.
Lucy is a NAPO colleague, and while she and Jon did discuss Evernote and organizing, I was most taken by her approach to making a symbolic (and clear) division between life and work through ritual. It was a compelling chat, and I felt like I was listening in on a cool conversation at the next table in a café.
By the next episode, Me And My Evernote With Ray Sidney-Smith, I was definitely hooked. Ray being on the podcast was a double-delight for me. First, you’ve already met my productivity buddy Ray in many Paper Doll posts, so you’ve read how much I respect him, like in Paper Doll Picks: Organizing and Productivity Podcasts. He is one of the kindest individuals I’ve ever met, with a wicked/quick/clever sense of humor, and a wisdom surrounding productivity concepts in general and Evernote and David Allen’s Getting Things Done in particular.
But Ray is also special to me because he was my very first Evernote friend. We were in the same certification class, way back in 2015, and I am always agog at how much he manages to do, because is he reminds me of that movie title, Everything Everywhere All at Once.
He works a day job, he knows everything there is to know about Evernote, he leads in-person and virtual productivity meet-ups, and as he disclosed in the episode, he’s read more than 400 productivity books! According to my Goodreads book list, I’ve read a lot, but 400?!
For what it’s worth, I messaged Ray to see if he’s got a written, sharable list of his books, but sadly no. To be honest, I’m a bit shocked he doesn’t have an Evernote note listing every title, but he’s taken my request on board and put it on his Maybe/Sometime task pile. I’ll be sure to let readers know if he comes forward with a full accounting of all of the titles!)
MEETING THE MAN HIMSELF
At this point, having listened to three of my friends and colleagues get to chat with Jon (and then going back to hear his convo with our fellow Evernote Certified Expert Vlad Campos, maker of fascinating technology, productivity, and Evernote videos), I had to let Jon know how much I appreciated his stuff.
I did a little poking around and found that, like me, he had a whole prior career in broadcasting! (You can be sure that, off-microphone, had and I have now had some rollicking conversation about that era of our lives.) He also builds websites, develop marketing campaigns, and works with businesses to improve their digital content. Plus, he hosts the Not Another Marketing Podcast that covers the whole realm of digital marketing.
On top of it all, which is what made me realize he was more than just the guy I knew from the Experts forum, he started the Taming the Trunk newsletter and community. (The “trunk,” for the uninitiated, is the Evernote elephant logo’s trunk.) And from there, I guess creating the Triple “T” (get it? “Taming the Trunk?) Productivity Podcast was a natural extension.
Jon’s located on the Welsh border in Shropshire, West Midlands, and while I did get to go to England, Wales, and Scotland on my 2019 tour of the UK, I never got that close to where he is, which is a real shame because (as you’ll hear if you listen to any of these podcast episodes) he and his charming accent are a delight!
Once we realized all the connections between us, Jon was lovely enough to invite me on his show, and we recorded the episode, Me and my Evernote with Julie Bestry, last week. I think you’ll be able to tell that we had a ball!
Jon asked me about all my favorite topics, from my take on paper vs. digital to what I really think of the idea of scanning all of your papers. Plus, Jon’s got a short list of questions he asks all of his guests, including a knockout of a question about life advice, which gave me a chance to share the always-brilliant wisdom of Paper Mommy.
You can listen to all of these episodes at the website episode pages to which I’ve linked above or at the episode archive, but for the full experience, subscribe and listen to the Triple “T” Productivity Podcast at Apple Podcasts, Spotify, Amazon, and (as they say) wherever you get your podcasts.
I invite you to listen to my episode and let me know what you think.
Follow Me