Reference Files Master Class (Part 3) — Medical Papers
Posted on: January 29th, 2024by Julie Bestry |
16 Comments
For our final post of Get Organized & Be Productive (GO) Month, we’re continuing our refresh of classic posts and essential concepts in paper organizing. So far, we’ve looked at:
Today, we continue onward with the next element of the reference papers in your personal or family filing system.
Financial
Legal
Medical
Household
Personal
MEDICAL FILES
There’s a special name the information you maintain about your medical life: a personal health record (PHR). With the financial and legal documents we covered last week, I strongly recommended using to develop your file management skills; however, you’ll see that with medical information, I recommend a hybrid approach with paper and sometimes a digital one.
Your Role as Personal/Family Medical Historian
You may wonder why you might need to keep medical paperwork of any kind. After all, don’t the doctors all have your files? It’s not like the average person has a collection of all their own dental X-rays and test results laying around. But there are certain reasons you should keep at least some of your medical information, if not your actual records. For example:
When you go to a new health care provider or visit the hospital, you will be asked for a detailed medical history. Will you really remember the years and types of all of your (or your family members’) illnesses, surgeries, and complications? Which physicians were seen and what their contact information was? Which medications caused allergic reactions? It’s your job to provide that information.
If you change health insurance companies or apply for life insurance, you’ll have to provide a detailed medical history. If you are found to have given even the teeniest of wrong answers, your policy could be voided retroactively and you could be on the hook for hundreds of thousands of dollars of healthcare!
First responders may need information in a hurry. This is why you need to keep updated copies of your medication lists (medication names, dosages, prescribing physicians) in multiple places, immediately accessible. (See Organize to Help First Responders: The Vial Of Life for details on this specific issue.)
Quick access to accurate information may determine a medical course of action. For example, if your college student calls to say they had a minor accident and the student health center wants to know how long ago they had a tetanus booster, don’t you want to give the right answer? (Better yet, arm your adult kids with copies of their records so they’ll know!)
If you’re in the ER or at Urgent Care and are asked a question about your medical history, you can’t rely on your primary care physician’s records. The doctor’s staff may be unreachable on weekends and holidays, or in the evenings, or on inclement weather days.
Your physician or dentist may retire with little notice, giving you no chance to get copies of records. (I’ve had three doctors and a dentist retire in the last 5 years. Yes, I’m starting to take it personally!)
If you can prove you’ve already been tested for certain things, you may be able to avoid unnecessary (and expensive) medical tests.
If you have proof of immunizations, you can make sure you’re protected against all sorts of yuckies without having duplicate ouchies! (Yes, these are the correct medical terms.) Proof also ensures that your children can attend school or go to summer camp. (You do not want to spend the days prior to driving cross-country to your student’s new campus rushing to find a physician who will squeeze your 18-year-old in for shots.)
Speaking of immunizations, if you ever work or vacation outside North America, you may need proof of health and immunization for travel; you don’t want to have to contact your doctor over and over and be beholden to their convenience and schedules. (For more, check the CDC’s Yellow Book on Traveler’s Health.)
Additionally, you may be responsible for making decisions or overseeing care for someone else. This might be your child or your spouse, where you can rely on your memory. But what if you’re involved in the care of an elderly and/or ailing relative? Wouldn’t you prefer they had this information organized and available to you?
And what if you’re the one who is ill and needing someone to advocate for your medical well-being? While it’s important for your healthcare proxy (the person with your medical Power of Attorney) to have access to the full picture, sometimes it’s just helpful for your loved ones to be able to provide educated input when you are feeling woozy or distressed.
Methods for Organizing Medical Information
To start, create a hanging folder for each person in the household. How many internal folders you’ll need for each person depends on how much information pertains to each individual.
One folder may suffice for younger, healthier individuals with limited records. However, my clients often use three — one for medical information, one for dental information (often including extensive orthodontia plans), and one for vision (to track vision changes and safely keep eyeglass or contact lens prescriptions until needed). If anyone in the family has a specific, ongoing medical condition (diabetes, arthritis, etc.) add extra interior folders as needed so you can track specialized medical information.
There are other auxiliary methods for maintaining medical records:
3-ring binders — If you or someone in your family has a complicated medical situation, a chronic illness, or is undergoing cancer treatment or dialysis, and is visiting many doctors and hospitals, often having to supply information repeatedly, a sectioned-three ring binder for mobile use may make it easier for you to take notes or have providers make copies of your information. Consider this an adjunct to your paper file system, with sections for appointment dates, notes, special instructions, and test results.
Medical Organizer — If you are in college or newly graduated, your filing space in a dorm or small apartment may be limited. To get you started, you may want to use a something like the multi-pocked Smead All-in-One Healthcare and Wellness Organizer.
Digital records (DIY approach) — Spreadsheets like Excel or Google sheets, or typing and/or scanning to note-taking apps like Evernote or OneNote allow you to maintain records and access them digitally. Collect and collate your paper files first; transfer notes once you feel like you have a handle on things.
Digital records (using apps) — There are a number of Personal Heath Record apps available, from Apple Health and Android Health built into your phone, to free and paid apps like MyID, FootprintID, and MyChart.
Patient Portals — Doctors, medical groups, and hospitals have patient portals where the medical providers store information for you (and other providers to access). Depending on the portal, you may be able to upload and download information for you own use.
DIY digital storage, PHR apps, and patient portals all have advantages and disadvantages for different user types; we’ll discuss these in greater depth in a future post.
I’m sure you’re familiar with the old saying, “An ounce of prevention is worth a pound of cure.” A bit of preventative organizing of your files and information is worth the effort to preserve your time, money, and possibly even your health.
Let’s look at the kinds of information you can and should maintain.
MEDICAL CONTACTS
In the tense moments of an emergency (or the fuzzy moments of day 2 of the flu), you don’t want to have to rely on your memory to contact the right medical professional.
Keep contact information for each medical professional seen by each person in the household.
For each health care practitioner, include the name, address, phone, and email address. Some providers still use and require fax machines. Yes, just like 1987. If they list one on their website or appointment cards, put it in your records; you never know if another physician will have to send or receive requests via fax.
If you use your provider’s online patient portal, note how you access it (app? URL in the browser?) and your login credentials.
To get you started, collect information for any of the following that are (or might be) applicable for the members of your household:
Primary care physician (Internist/Family Practitioner)
Alternative Care Practitioners (acupuncturist, chiropractors, herbalist, massage therapist)
Nurse line for your insurance company, for when you’re not sure what to do, whether something is an emergency, or whom to see. If you do not have insurance, check to see if your state’s Department of Health has an Ask-a-Nurse line.
Your regular pharmacy — Additionally, if you spend time in other places (Grandma’s house in Florida, a time-share, your child’s college town), list your preferred pharmacies there, too.
Unless one family member sees a lot of specialists, a sheet or two paper tucked into a folder in the front of the household medical section (in front of personalized folders) usually suffices.
If you create a mobile medical binder, put this at the front.
Digital approaches to tracking medical contacts
If you’re building a personal health record digitally, either in addition to or instead of a paper record, your options (from least to most effort) include:
Snap photos of appointment/contact cards and store in an album in your phone’s photo app (labeled Medical Contacts) or in a cloud-based note storage system like Evernote or One Note.
Enter each contact in your phone’s contact app. You may want to enter each physician prefixed with “Dr.” (even if, strictly speaking, they aren’t doctors) or “Med” so that when you look at your phone, all medical professionals will be in sequence for quick and easy scrolling. That way, if you’re feeling panicky, you can focus on all likely names at once.
Create a page in a spreadsheet (like Excel or Google Sheets) for medical contacts. Don’t forget that you can have multiple spreadsheets in a workbook, with each sheet having its own tab at the bottom, so you could build your entire personal health record in one workbook, for you and your entire family.
Use the contact fields in a medical record/PHR app.
Keep a contact list in your primary care provider’s medical portal if there’s a field or module for that.
As a caveat, know that you can’t always get on hospital WiFi or access cell service, and when panicked you may not be able to remember your passwords. (A digital password manager helps with the latter.)
MEDICAL HISTORY
Basic details “cover” page — birth date, sex assigned at birth, blood type, organ donor status, status conditions you’d want to remember to share first (organ recipient, current cancer diagnosis, diabetes, etc.)
Medications (see next section)
Immunization records — Use these links to review what childhood and adult vaccines are standard and/or required:
Test Results — Keep a record of standard and specialized screening results like cholesterol and other blood test results, and bone density tests for women, and prostate-specific antigen (PSA) tests for men, as well as letters confirming results of colonoscopies, mammograms, pap smears, etc.
Personal Medical History — Log any serious illnesses, fractures, accidents, surgeries, transfusions, or procedures.
List any chronic (long-term) health conditions, such as arthritis, asthma, diabetes, or high blood pressure.
Log all reproductive health and pregnancy history.
List mental health issues — as with physical health, note any mental health conditions, treatments, and medications as well as the dates.
Record any implanted medical devices — These may include pacemakers, artificial hip or knee joints, artificial heart valves, implanted lenses after cataract removal, etc. Patients with implants are given cards with serial numbers. Maintain the cards, but keep copies with you (in your wallet or digitally), for when you travel.
If you are relatively young and healthy, your response to the inquiry might just be one daily Flintstones vitamin, preferably an orange Dino or purple BamBam. But if you are over 40 in North America, there’s a good chance you take any of a variety of meds for cholesterol, GERD, blood pressure, blood glucose, anxiety, depression, and/or other conditions.
As I’ve previously written, in November Paper Mommy fell and fractured her pelvis in two places. In the ER, and again when she was moved to a room, she was asked about her medications. This is not a fast, easy recitation for most people, and wouldn’t be easy to recall when in agonizing pain. I happened to call just as the nurse was beginning to log the information, and asked if my mom would prefer me to fill the nurse in. Because we’d set up primary care provider’s patient portal, I was able to log in and recite each prescribed medication, vitamin, and mineral, dosage, and time of day it was taken.
Reporting accurate meds and dosages ensures that care for secondary issues isn’t compromised when an acute condition causes hospitalization.
For most families, a page in each individual’s “Medical” folder may be enough. However, if your family members take many prescriptions, you may wish to keep a separate folder to track all medications. Compile your own list or spreadsheet, or download a free template, then print a copy for your files (and your binder, if applicable).
Include each medication’s brand or generic name, dosage, frequency (number of dosages per period — as needed, daily, weekly), prescriber (if applicable), purpose and date started. It may also be helpful to list the method (pill, inhaled, injection, patch, etc.). Remember to reference:
Prescriptions — Your instinct will be to list meds you take every day, like oral contraceptives or meds for preventative and treatment purposes. But don’t forget acute-care drugs that you might take as needed, like anti-vertigo meds, Epi pens, migraine medicine, or rescue inhalers. Log everything!
Dietary supplements — Some vitamins, minerals, and health beverages can, even when not prescribed, can have an adverse effect on your health.
Herbal remedies — Whether you take them based on your own research or as recommended by alternative care providers, a full health record (and report to physicians) must include these.
Non-prescription medications — Include low-dose aspirin therapies for preventing heart disease and stroke, or any other OTC meds you take.
ALLERGIES
Keep a page in each family member’s medical folder to note whatever allergies they have to:
Animals allergies — My sister has asthma and allergies as a child. Testing found she was allergic to cows. (If you know Paper Mommy, I think you know my sister would probably never have gotten close enough to a real cow to find that out organically!)
Dental health is closely tied to medical health. Oral health can impact cardiac and hematological health and pregnancy, and conditions like diabetes and osteoporosis can impact oral health. Good medical and dental records complement one another.
Don’t worry if you don’t have a detailed dental treatment plan, but if your doctor or orthodontist provides a written treatment plan, keep it in that individual’s Dental folder. Keep notes regarding when you’ve had dental X-rays and what procedures you’ve undergone.
Keep records of your prescriptions for easy vision-wear re-ordering; you never know when your eye doctor might retire. If you don’t see the same ophthalmologist every time, consider keeping copies of your old eyeglass/contact lens prescriptions in your vision care folder, in reverse chronological order.
VETERINARY RECORDS
You probably consider your pets to be part of the family. Keep veterinary medical records in hanging files just behind those of the human family members. Each pet needs just one file folder — file reports and proof of shots in reverse chronological order. (Just pop each new thing in the front of the folder.)
HOW TO GET YOUR RECORDS
In your twenties, your medical file may only include your immunization record and notes on occasional healthcare visits. However, starting your filing system early will make it much easier to know where to put notes as your medical history (and family) grows.
What if you don’t even have any medical records to even start this paperwork?
Check with your parents.
It’s possible that your mom kept your childhood immunization records with your baby book. Paper Mommy did, and it made it easier when I was trying to figure out when and whether I’d had certain types of immunizations.
Contact your doctors’ offices and tell them you want to create a personal health record.
If you don’t have a complex medical history, this might be as easy as reaching out to your childhood pediatrician (if they’re still practicing) and your current primary care physician. Alternatively, you could wait until your next appointment, and request your records then.
If you’ve had multiple physicians — not the random provider you saw when you visited the Doc-in-the-Box you had when you had a cold 15 years ago, but specialists you’ve visited for diagnoses and/or treatment — try to make a list, do some Googling, and see what contact information you can put together. Then contact them to request copies of your records.
If you’ve had any serious hospitalizations, contact the hospitals to see what records you can get. For any physicians, clinics, or hospitals, the longer ago it was, the harder it will be to get your records. But something is always better than nothing.
You probably don’t need every single record. After my father died, I went through the paperwork he’d saved, and there was everything from office visit summaries to medication lists that were just copies of records from the prior appointment. Get the essentials, not the also-rans.
Sign a release form.
Each office will make you sign a form to release records to yourself just as though you were authorizing them to release the records to another doctor, insurer, or individual.
Be prepared to pay a copying fee.
Depending on how extensive your records are, you may be asked to pay a fee to cover the time and labor for copying the files; you can avoid a mailing fee if you can offer to pick the files up from the office yourself. Ask how long it will take to get copies of your records.
Stay healthy, work toward collecting this information slowly, and next week we’ll close out our look at the five major personal filing categories with household and personal papers.
For reference, the entire series can be found at the following links:
This is such a comprehensive and essential list. I really resonated with the medication list. If something happened to me right now, my husband would not know what medications I take daily. My mother had many health issues, and my Dad had an incredibly detailed list that was very helpful. Again, bookmarking this Julie. This whole series has been incredibly beneficial.
Thank you, Jane. I’m a “completist” and can’t seem to bring myself to post until I’ve exhausted everything. For older parents, I always encourage looking at the older post I linked to, Organize to Help First Responders: The Vial Of Life. It advises where to keep lists of current medications so the first responders can look quickly.
Where were you when I was asked to give a presentation on this very subject at my local library umpteen years ago?
I used the information I gathered to create a Personal Medical Organizer binder which I sold for many years. There are much better products out there now.
LOL, whenever it was you were giving that presentation, I was right here! 😉 If you had slides and didn’t read the whole thing, maybe it wouldn’t have taken all day to present this.
Great post, Julie! This is super important. I reviewed our process when my kids were going away to college. And I made sure each of them had their own login to their account so they could get their own medical records, plus other contact information.
It is important that college-age children know that they are now of legal age, and if they want a parent to do something on their behalf, they must tell the doctor, pharmacy, etc. This was super helpful when I had to deal with a billing issue from my son’s emergency room visit when he was in college.
You’re so right. I always advise my clients to make sure that their college-bound kids arrange for their parents to have Power of Attorney/medical proxy so they can be informed of what’s going on if the college kids can’t give authorization to the doctors.
You’ve given me an idea for a blog post; I’ve written before about organizing a dorm room, but these kinds of arrangements for college students is not covered enough. Thanks for the prompt!
My mom is now gone, but when she was alive, we had many healthcare emergencies with ER and hospital visits. Since she had dementia, she couldn’t share her medical history, medications, or allergies. I was the one. So, after the first time I was caught off guard, I created a chart that I always carried. It listed the vital info, including meds, doctors, brief medical history, and more. It was invaluable.
I love all the resources and ideas in your post. For some of us, it will be that first emergency that lights the fire to have this info ready. But if you can do it in advance, the potential emergency will be slightly less stressful.
You’re right that it’s the first emergency that makes everyone aware, but I still hope that there will be people who will read this and pass it on to their young adult kids, or their starting-a-family friends, or perhaps discuss it with Dad or Grandma, to make sure everyone is protected.
I started a ‘pediatrician’ book for both of my kids when they were born and I bring it with me to all of their appointments. In fact, my kid’s pediatrician knows that I’m a professional organizer and enjoys joking with me about my books and note-taking. I use it to track height, weight, immunizations and their medical history as well as specialist referrals, advice, and reminders. My boys are 17 and 13 and love to flip through their books and walk down their medical memory lane while we’re in the waiting room.
You “pediatrician” book is fabulous. I wish more people were advised (even by their obstetricians or midwives) to do this; parents could easily set this up during the nesting phase and be prepared long before they go into sleep-deprivation mode! I’d love to see a blog post from you about this very topic!
Such a comprehensive list! It’s reminding me of the importance of parsing through medical information. Often, we just through paperwork into a generic “medical” folder, but that’s an awful lot of paperwork to sort through if you are looking for specific information!
You’re so right, Phaedra. I think most people either keep everything in a mish-mash or toss almost everything out, but there’s so much value in keeping track of our health-related information. Generating what we don’t have, and keeping what we do, can help us safeguard our own well-being and that of our loved ones.
This is another amazing post. These posts on organizing paper could be a fabulous ebook.. thoughts?
I want to piggyback on something Sabrina said about children and college. When your child turns 18, medical professionals will not talk to you unless they have express written permission from the young adult. A friend of mine’s daughter was in an accident and away at college. My friend tried to get information about her daughter’s condition from the doctor over the phone and was unable to – nor was she able to provide some necessary information to the doctor about her daughter. Of course, this was back in the dark ages (early 2000’s). It’s very important that these young adults have a paper medical file to take with them to college.
Also, about medications.. Jonda and I created a Customizable Medication Tracker Checklist that we sell in our Etsy shop. It’s a Fillable document so it can be easily updated as medications or prescriptions change.
Thanks for all this great information, Julie!
Thank you for the praise, Diane. Coming from you, I’m honored by it. And perhaps someday, there will be an ebook from it.
I completely agree about college-aged kids; it’s why I always encourage my clients to have their kids get PoA/healthcare proxies signed before they leave for college. And yes, they need those files!
I’ll keep my eyes open for your medication tracker; I don’t think I’ve seen it! Feel free to drop the link in reply to this comment so others can benefit!
Thanks, Janet. For those who *will* do it, scanning is great. As with everything, it’s all about the reality check. I know I’d be too lazy to scan, but I never mind filing. (And, in the middle ground, I’m fine with uploading something to Dropbox that I’ve downloaded from a medical portal.) Others may be the exact opposite in their preferences. I try to cover all the bases, but there are so many different angles! I appreciate your kind words.
This is such a comprehensive and essential list. I really resonated with the medication list. If something happened to me right now, my husband would not know what medications I take daily. My mother had many health issues, and my Dad had an incredibly detailed list that was very helpful. Again, bookmarking this Julie. This whole series has been incredibly beneficial.
Thank you, Jane. I’m a “completist” and can’t seem to bring myself to post until I’ve exhausted everything. For older parents, I always encourage looking at the older post I linked to, Organize to Help First Responders: The Vial Of Life. It advises where to keep lists of current medications so the first responders can look quickly.
I appreciate your kind words.
Where were you when I was asked to give a presentation on this very subject at my local library umpteen years ago?
I used the information I gathered to create a Personal Medical Organizer binder which I sold for many years. There are much better products out there now.
LOL, whenever it was you were giving that presentation, I was right here! 😉 If you had slides and didn’t read the whole thing, maybe it wouldn’t have taken all day to present this.
And I remember your medical organizer!
Great post, Julie! This is super important. I reviewed our process when my kids were going away to college. And I made sure each of them had their own login to their account so they could get their own medical records, plus other contact information.
It is important that college-age children know that they are now of legal age, and if they want a parent to do something on their behalf, they must tell the doctor, pharmacy, etc. This was super helpful when I had to deal with a billing issue from my son’s emergency room visit when he was in college.
You’re so right. I always advise my clients to make sure that their college-bound kids arrange for their parents to have Power of Attorney/medical proxy so they can be informed of what’s going on if the college kids can’t give authorization to the doctors.
You’ve given me an idea for a blog post; I’ve written before about organizing a dorm room, but these kinds of arrangements for college students is not covered enough. Thanks for the prompt!
My mom is now gone, but when she was alive, we had many healthcare emergencies with ER and hospital visits. Since she had dementia, she couldn’t share her medical history, medications, or allergies. I was the one. So, after the first time I was caught off guard, I created a chart that I always carried. It listed the vital info, including meds, doctors, brief medical history, and more. It was invaluable.
I love all the resources and ideas in your post. For some of us, it will be that first emergency that lights the fire to have this info ready. But if you can do it in advance, the potential emergency will be slightly less stressful.
You’re right that it’s the first emergency that makes everyone aware, but I still hope that there will be people who will read this and pass it on to their young adult kids, or their starting-a-family friends, or perhaps discuss it with Dad or Grandma, to make sure everyone is protected.
Thank you for reading!
Wow! What a compilation of ideas and resources!
I started a ‘pediatrician’ book for both of my kids when they were born and I bring it with me to all of their appointments. In fact, my kid’s pediatrician knows that I’m a professional organizer and enjoys joking with me about my books and note-taking. I use it to track height, weight, immunizations and their medical history as well as specialist referrals, advice, and reminders. My boys are 17 and 13 and love to flip through their books and walk down their medical memory lane while we’re in the waiting room.
You “pediatrician” book is fabulous. I wish more people were advised (even by their obstetricians or midwives) to do this; parents could easily set this up during the nesting phase and be prepared long before they go into sleep-deprivation mode! I’d love to see a blog post from you about this very topic!
Thanks for reading and sharing your story!
Such a comprehensive list! It’s reminding me of the importance of parsing through medical information. Often, we just through paperwork into a generic “medical” folder, but that’s an awful lot of paperwork to sort through if you are looking for specific information!
You’re so right, Phaedra. I think most people either keep everything in a mish-mash or toss almost everything out, but there’s so much value in keeping track of our health-related information. Generating what we don’t have, and keeping what we do, can help us safeguard our own well-being and that of our loved ones.
Thank you for reading and sharing your thoughts!
This is another amazing post. These posts on organizing paper could be a fabulous ebook.. thoughts?
I want to piggyback on something Sabrina said about children and college. When your child turns 18, medical professionals will not talk to you unless they have express written permission from the young adult. A friend of mine’s daughter was in an accident and away at college. My friend tried to get information about her daughter’s condition from the doctor over the phone and was unable to – nor was she able to provide some necessary information to the doctor about her daughter. Of course, this was back in the dark ages (early 2000’s). It’s very important that these young adults have a paper medical file to take with them to college.
Also, about medications.. Jonda and I created a Customizable Medication Tracker Checklist that we sell in our Etsy shop. It’s a Fillable document so it can be easily updated as medications or prescriptions change.
Thanks for all this great information, Julie!
Thank you for the praise, Diane. Coming from you, I’m honored by it. And perhaps someday, there will be an ebook from it.
I completely agree about college-aged kids; it’s why I always encourage my clients to have their kids get PoA/healthcare proxies signed before they leave for college. And yes, they need those files!
I’ll keep my eyes open for your medication tracker; I don’t think I’ve seen it! Feel free to drop the link in reply to this comment so others can benefit!
This is all wonderful information. We’ve been scanning all the records and keeping copies just in case. Great post like usual.
Thanks, Janet. For those who *will* do it, scanning is great. As with everything, it’s all about the reality check. I know I’d be too lazy to scan, but I never mind filing. (And, in the middle ground, I’m fine with uploading something to Dropbox that I’ve downloaded from a medical portal.) Others may be the exact opposite in their preferences. I try to cover all the bases, but there are so many different angles! I appreciate your kind words.